Being told your child has a heart defect and needs surgery is probably one of the worst things you will ever hear. Nothing can prepare you for it, especially when all the doctors and nurses have been saying, “I’m sure it’s nothing to worry about.”
It’s been over 3 years since we found out about Bo’s defect and coming up 2 years since his operation so I thought I would share some things I’ve learnt.
Today is International Congenital Heart Disease Awareness Day.
I didn’t want to let the day pass without writing about our experience and sharing Bo’s story. Continue reading
This subject is something very close to my heart.
We didn’t know about Bo’s heart defect until he was already one year old.
I didn’t know anything about congenital heart disease at the time but since his surgery I came across this information from a charity called Tiny Tickers. It’s so interesting – my baby had almost all of these symptoms but I didn’t know what I should be looking for so I’ve put them here to make more people aware.
I don’t want to make anybody worried but I think it’s better to get things checked out!
If you feel you’d like to donate to this cause then it’s easy to do – just text the TINY11 + the amount you would like to donate e.g. TINY11 £5 to 70070
Every little helps x
As you may or may not know that my little boy was born with a heart defect.
He had his surgery in October 2013 at Leeds General Infirmary.
The Children’s Heart Surgery Fund is a charity that works with the hospital to provide things for the patients and families affected by CHD, everything from stickers and toys, to life saving equipment and accommodation for parents who travel from all over the Yorkshire, Humberside and north east Lincolnshire.
Friday 6th February will be the 3rd annual ‘Wear Red Day’ to raise money for the charity. Last year over £32k was made and used to refurbish the Paediatric Cardiology Ward & High Dependency Unit in the Children’s Hospital at Leeds General Infirmary.
We will be wearing red and texting WRED15 £3 to 70070 to show our support. Do you think you could too?